Specific policies related to collection and use of information through certain AAN interactions, activities, or programs may be noted and addressed within that interaction, activity, or program (e.g., the Data Governance Policy governs information collected via the Axon Registry® clinical data registry).
The AAN also provides external links to other websites. Once you enter another website (whether through an advertisement, service or content link), the AAN is not responsible for the privacy practices of such other sites. We encourage you to review the privacy policies of each website that you visit.
Information We Collect
Anonymous and Aggregated Web Traffic Information. General traffic, site usage, browser information, length-of-stay information, and location data, is collected and stored in log files. This type of information is collected and shared on an anonymous, aggregated basis.
Personal Information (non-financial). We collect all or some of the following personal information: first and last name, street address, city, state, zip code, telephone number, email address, and subject of inquiry, in the following contexts:
AAN Member Customized Website: To gain access to members-only resources and personalization features on the Website, AAN members are asked to provide a unique user ID and password. The AAN's web server tracks the domain names and IP addresses (not the individual e-mail addresses) of members entering the members-only area, but only for purposes of measuring the general number of visits, pages visited, average time spent on the site, etc. We may collect and track your contact information (address and phone number) and AAN Member ID number. As an AAN member, when you personalize the Website, we retain the preferences you select so that you will not have to reenter the information each time you access our Website. You can access your profile by entering your user name and password each time you use the Website. When you're logged in, we can see your member ID and your location.
- Registration: If you register to participate in an AAN event, program, or promotion using online or paper registration forms, we collect and store your name, address, phone number, email address, and any additional information you voluntarily provide on the registration form.
- Membership Application: If you apply to become an AAN member, using online or paper application forms, we collect and store your name, address, phone number, email address, and any additional information you voluntarily provide on the application form.
- Requests: We collect information volunteered by users, including from surveys or requests via "Contact AAN." We also may collect the email addresses of those who communicate with us via email.
- Find a Neurologist: We disclose contact information to the public that you provide if you elect to participate in the Find a Neurologist directory: https://patients.aan.com/findaneurologist/.
- AAN Member Search: We disclose the contact information AAN members provide in the AAN Member Directory. The directory is a reference tool for AAN members only. Users of the directory may not provide the contact information (name, email address, phone number) contained in the directory to others or use it for promotional or survey purposes without the written permission of the AAN. Excessive use or abuse of the directory may result in loss of access for the user.
- Products: We may collect some contact information you're explicitly asked to provide in connection with certain AAN products (e.g., NeuroSAE®).
Financial Information. When you place an order online with us, register for a conference, or pay your dues electronically, standard credit card information (card number, card type, expiration date, etc.) is collected through a third-party payer who is compliant with Payment Card Industry data security standards. The third-party payer provides us with, and we store the last four digits of your credit-card number, which is retained for purposes of issuing applicable refunds.
Protected Health Information. The AAN does not collect "protected health information" as defined by the regulations issued under the Health Insurance Portability and Accountability Act (HIPAA) of 1996 via the Website.
The Axon Registry®, via AAN's registry vendor (FIGmd), collects relevant patient data and performs statistical analysis to improve the quality of neurologic care and patient outcomes. The AAN and FIGmd comply with the laws and regulations applicable to the Axon Registry and have adopted HIPAA Privacy Policies and Procedures. To further describe the collection, use, disclosure, and stewardship of Axon Registry data, the AAN adopted the Axon Registry Data Governance Policy.
How We Use Your Information
In addition to the uses described above, examples of ways we may use your personal information internally include:
- To respond to your questions;
- To provide to you the services or subscriptions you select;
- To contact you regarding AAN events or other news;
- To send you information you request;
- To send and manage surveys;
- To advise you of products or services that may be available through the AAN;
- To notify you about Website maintenance, updates, and new features;
- To manage membership and volunteer functions;
- To confirm or fulfill purchase and registration requests;
- To display content we think may be of interest to you and otherwise help us customize what you see when you visit the Website;
- To solicit user feedback to assess user-satisfaction or other needs and interests;
- To help us in creating new tools, features, and services;
- To send you materials on behalf of trusted third parties; and
- Otherwise in rendering, administering, and improving the Website, our services, and our business.
We will only disclose your personal information (excluding financial information) to third parties under the following circumstances and subject to the stated limitations:
- Disclosure to the American Brain Foundation;
- Disclosure of the following AAN membership information to third-party requests:
- Verification of membership, including start date and status of membership; and
- Committee appointments, Section affiliations, or Offices held;
- Disclosure at your request, such as to complete transactions you undertake on the Website;
- Disclosure of AAN member postal address, city and state, for US members only, for approved mailings determined to be of interest to the AAN membership. Members may opt out of receiving non-AAN mailings, as stated below.
- Limited disclosure of contact information to trusted third parties to offer products and services to our members;
- Disclosure of mailing information to commercial third parties only for US attendees of the AAN Annual Meeting who have not opted out of commercial mailings (when registering for the AAN Annual Meeting, US attendees have the option of opting out of having their contact information provided to commercial entities involved in the Annual Meeting for the purpose of hardcopy mailings, invitations, and emails from those commercial entities);
- Disclosure to private entities and law enforcement or other government officials as we, in our sole discretion, believe necessary or appropriate (a) to investigate or resolve possible problems or inquiries, (b) to conform to legal requirements or comply with legal process served on the AAN, (c) to protect our own business and assets, or (d) in special cases, such as a physical threat to you or others; and
- Other disclosures for which you have consented to such use in an agreement between you and the AAN.
Whenever we disclose your personal information to third parties, we will make commercially reasonable efforts to limit the information to which third parties have access and require that the recipients of the information keep it confidential and use it only for the purposes designated by the AAN.
Your Rights and Responsibilities
Security. While we take measures to protect your personal information, no security measure or network is entirely secure. If applicable, your password to access aan.com should be complex and should never be shared with anyone, and should be changed from time to time. After you access aan.com, you should log off and exit your browser so unauthorized persons cannot access the site.
Opt-out. If you do not want to receive email, postal mail, telephone calls from us in the future, or if you do not want us to share your contact information in the manner described above, please provide us with your exact name, email and postal addresses, phone and fax numbers and, if appropriate, AAN membership number to email@example.com.
If you no longer wish to receive emails from us, it may take up to 48 hours for your opt-out request to become effective. If you no longer wish to receive postal mail from us, it may take up to 6 weeks for your opt-out request to become effective.
While we will continue to share information we maintain about you with our service providers and subsidiary to provide member services, we will take reasonable steps to ensure that any other specific contact information you so identify is removed from lists we share with other organizations.
Email addresses for international members, meeting attendees, or Website users are not provided outside of the AAN, its affiliated entities, service providers, or other AAN members as appropriate, and opt-ins are collected when required.
Access and Corrections. On request, we may provide site visitors with access to information that they submitted via the Website, such as certain transaction information (e.g., dates on which users made purchases, amounts and types of purchases), communications that the visitor has directed to our site (e.g., emails, user inquiries), and contact information (e.g., name, address, phone number). On request, we may also offer the ability to have inaccuracies corrected in contact information, unique identifiers, transaction information, and certain other data.
If you are under 18 years of age, you may not purchase products or services from, and you should not provide information to, the Website without the involvement of a parent or guardian. We do not collect online contact information without prior parental consent or parental notification, including an opportunity for the parent to prevent use of the information and participation in the activity. We do not knowingly solicit personal information online from, or market online to, children under the age of 13. While the “Ask a Neuroscientist” webpage offers resources for children, we do not collect, use, or disclose personal information from children who visit the webpage.
The AAN and the Website are based in the United States and, regardless of where you access the Website, the information collected as part of that use will be transferred to and maintained on servers located in the United States. Any information we obtain about you will be stored in accordance with U.S. privacy laws, regulations, and standards, which may not be equivalent to the laws in your country of residence. By using the Website, you consent to this collection, transfer, storage, and processing of information to and in the United States in accordance with the foregoing.
Updates, Comments, and Questions
Last Updated: September 7, 2017
AAN Contact Information
Via postal address -
American Academy of Neurology
201 Chicago Ave
Minneapolis, MN 55415
Via email: firstname.lastname@example.org